Sebastian is now nearly 9 months old and was initially diagnosed with LCH but we were told on Thursday night after the genetic testing results came back that it's definitely a leukaemia. They need to take another lesion biopsy and bone marrow sample to try and confirm which type of leukaemia it is now as his presentation is quite unusual apparently.
They can't start any treatment until they know for sure the type & subtype of leukaemia GOSH is one if the best hospitals in the world so we're very lucky he's getting seen there.
They've let us home for Easter but the next time we go to hospital it's possible we'll be there for at least 6 months solid leaving Alexander (6) & Charlotte (4) home without their first mummy for the whole time give or take a few days which is heartbreaking in itself.
We've got no choice but to put our heads down and get through it but I just try not to think about it as it makes me physically sick. My poor baby boy.
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