Help Overcome a Rare and Unknown Medical Condition

Hello everyone. In around September of 2021, I ended up developing a severe and unknown medical condition which has completely dominated my entire life. It effects me everyday, ranging anywhere from muscle weakness to something close to complete paralysis. At it's worst I am unable to move, talk or think, which makes basically everything hard. When I was first dealing with it I saw medical treatment for this in the US, but basically none of the doctors knew what it was or took the time to study or understand what was happening as nothing would show on any tests, I got tossed around from doctor to doctor. I've lost count of how many doctors and hospital visits I've had, and no progress towards any healing or even advice on what to do. Meanwhile, this condition has gotten in the way of every job I have tried to work and daily survival and these last three years have been a struggle, but thankfully I have had the support of my mother to let me stay with her and support my medical bills when it was at it's worst.

However, I've found something which changes everything. There's a spot on my neck that when pressure is applied, will instantly cause my condition to happen. It seems to be some form of spinal issue, which means it's a physical ailment which has gone completely unnoticed by all and we weren't even looking in the right direction. With this knowledge, I'm ready to bring this to the doctors and see if I can finally get myself fixed, but turning 26, I am no longer able to be on my mother's medical insurance and must do so out of pocket. Even if I can just get a formal diagnosis from the system, I will be happy. Anything helps. Thank you everyone for your time.