Rynearson family medical expenses

My name is Justina Tyler and I am setting up this go fund me to help support Lacey, Preston and the Rynearson family as they navigate this new diagnosis for Preston.

Update 10/3/23

Preston has been diagnosed with B-Cell Lymphoblastic Lymphoma.

He’s had 5 rounds of chemo and he has Steriods twice a day to shrink the tumors. His chest his looking normal again and the large lump on his neck is no longer visible.

He’s been very tired with lots of back pain from the bone marrow samples. He’s been getting bad headaches when he sits up and stands. This is a side effect from the spinal tap since they were unable to get him flat. He’s been very moody from the steroids and very hungry. He has a limp and leg pain, and nausea.

He’s been such a trooper and finally getting better with taking medicine thanks to a sticker chart they made him.

He will be getting a port soon instead of his pic line he already has. Pic lines last for a couple months, and Ports can last for years. These are something they use to give treatments easier without having to do a new poke each time.

He has an MRI on Friday because when he got here there was no way he could lay flat on his back without compromising his airway due to the tumor around his heart and lungs.

We meet with the doctor and case manager today to go over more and we have an abundance of questions to ask.

We’ll know a confirmed discharge date today as well. They have to make sure there signs of the tumors breaking up in his blood work.

He will need PET scans, CT scans, X-Rays, Spinal taps, and more bone marrow samples periodically.

He will have treatments twice a week at the hospital.

He will have 9 months to a year of normal chemo treatments and then and other year and a half of maintenance chemo treatments until they can confirm it’s gone and not coming back.

There’s lots of rules and things we need to lookout for and watch. He cannot be around anyone that has recently been sick, or had an infection.

He will need to stay at the hospital if he gets sick or gets a fever. He cannot go to crowded public areas when his ANC in low.

And so many more!

Please keep praying for our sweet boy and thank you all so much for everything❤️.

Update: 9/29/23

The doctors at Randalls have confirmed Preston has cancer and the exact type will be 100% confirmed Saturday after the results from the bone marrow and spinal tap come in. He had his first dose of chemo today and did great!

This will be a long journey ahead and we thank you all for your kindness and your prayers! They are needed and much appreciated❤️!

Preston can finally breathe better due to the steroids reducing the size of the mass in the chest, allowing more airflow and relieving pressure off his lungs.

09/27/23:

Needing lots of prayers for our sweet boy❤️

The last month has been very rough. Preston got a lump on his neck after rough housing with his cousin.

We took him for an x-Ray and they said everything was fine and to come back if his voice became horse or it didn’t go away within two weeks.

The next day he has chest pain and can’t move his right arm so I called 911. The EMTs checked him out, his pain went away and they said everything was ok!

Two weeks pass, we notice a weird noise when he coughs, and his pain comes back and goes and bring him into his doctors office.

His doctor ordered a CT scan of his neck.

The CT scan showed that his Thymus gland is swollen but they do not know the cause and it should not be from an injury. It was most likely underlying but the injury made it worsen.

His doctor referred us to an ENT, but we are not able to get an appointment until November.

I reached out to get a blood test done to rule out Leukemia because I read that a enlarged Thymus could be related. While waiting to get that approved,

Last week Preston mentioned his back and left side hurt and he could not walk. I rushed him to the ER, and by the time we got to the parking lot he said his pain was gone.

I spoke to his doctors nurse and she said to still bring him in, just because of everything that is going on.

By that time his blood test was ordered and I scheduled it to be completed before bringing him to the ER.

We waited for over 4 house and nothing…

Besides they don’t see any life threatening results, but a doctor had not reviewed the results.

We check the results when we get home and they are all flagged…

After his doctor reviewed the results she mentioned his sodium and another level was elevated but nothing to worry about.

Then I noticed his Auto ABS NRBC was elevated and she had not mentioned that.

I did some research and the Auto ABS NRBC elevated is another sign of Leukemia, so I mentioned to the doctor and she said we can rule out Leukemia cause his white blood cells were normal.

But why was it elivated?

The doctor mentioned they should have ordered a chest X-Ray but they want to see him before they do that, and she’s a little booked out.

We schedule an apt with his doctor for Oct 2nd and

Meanwhile his Thymus gland starts to swell even more, and he gets a cold from the ER trip, it goes away quick but he has trouble breathing at night.

Fast forward to this morning, his oxygen level hit 80 and he’s gasping for air. I took him to Randall’s ER and I am ready to get this boy some real answers!

They have been attentive and amazing.

They took a chest x-ray and found his Thymus gland is now so swollen it has even moved his heart. And there’s more mass that they need to find out what it is.

They are sending us to the Cancer department because now they suspect it being lymphoma.

They took more blood and they are doing another CT scan this time of his chest.

This boy is so strong, and I mean SO strong!

He’s been through so much and fights through the pain cause he really doesn’t like going to the doctor.

But today Randall’s has already changed that! He’s playing with legos and taking it easy.

Please pray hard for us to get some answers for our sweet, strong boy of ours❤️!