Ryder's Road To Texas!

Hey guys! I want to share a little something about my life that is very near and dear to me but many may not know a whole lot about and that is my amazing nephew Ryder :)  Ryders story started in 2010 when my sister in law became pregant with her first baby! Super exciting right?! They found out at the 20 week check up that they were having a boy and that he had a rare condition known as a Vascular Anomaly...specifically a Lymphatic Malformation. He is a 1 in 50,000 statistic! Ryders malformation effects his face, head, neck, throat, back and mediastinum. Ryder was born via emergency csection 5 weeks early because his face was bleeding so heavily inutero. He was born without a heartbeat and was ressusitated after 20 min of CPR. He spent 7 months in the NICU at Childrens Hospital of pittsburgh. In those 7 months he underwent a tracheostomy surgery, a Gtube surgery along with countless other surgeries and procedures. .Fast forward to 3 years old...Ryder underwent a surgery to remove his tonsils, a normal surgery for a lot of kiddos..however because of Ryders malformation his surgery did not heal correctly causing a complication known as a pharengial stenosis. Essentially his throat has a scar band that tightens and closes of his throat completely, this makes it so that he cannot breath or eat like a normal kid. Ryder must endure a surgery to open up his throat every few weeks. Their family has been battling this stenosis to no avail for almost 4 years. To date Ryder has undergone over 150 surgical proceedures and counting. They have tried it all...stents, dialations, scar removal surgeries and chemo drugs but nothing has worked. Recently they were contacted by a former Dr. Of Ryders who now works at the Childrens Hospital of Texas. He believes he has come up with the solution to Ryders throat closing, a never before done minimally invasive surgery that could be LIFE CHANGING for Ryder. Ryder would be one of the first humans to undergo this surgery and if it works it could change the face of ENT medicine all over the world. More importantly this surgery could give Ryder the chance at a life without a trach, feeding tube and surgeries. Although Ryders malformation is life long, the stenosis does not have to be. The proceedure requires 4 trips to Texas, which we all know can be quite expensive and because of Ryders great medical needs the Hamricks live their day to day with only 1 income making this trip almost impossible for them to do alone. This is where I am asking for your help!  Ryder is the sweetest, strongest and most inspiring boy ive ever known so im looking to do some fundraising to give this kiddo the chance at a life changing surgery.  Ryder was dealt a challenging life but he lives everyday with a smile on his face and love in his heart and I will do ANYTHING to help make his life easier. Thank you so much guys, now   lets get Ryder to Texas!!! 

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  • Anonymous 
    • $25 
    • 40 mos
  • K&M Glivic 
    • $100 
    • 41 mos
  • Jennifer LaMagna 
    • $25 
    • 41 mos
  • Lisa Six 
    • $50 
    • 41 mos
  • Cynthia Rice 
    • $100 
    • 42 mos
See all

Organizer

Sarah Fuchs 
Organizer
Pittsburgh, PA
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