I would like to introduce myself, I'm Sarah, mother of Kobe. Kobes family and I are reaching out for help, for a vest air clearance system to improve his quality of life. 
Kobe our son, our oldest of 5 children is 13 living with Cystic Fibrosis, a rare genetic, progressive life threatening disease. Meaning it progressively worsens over time. It is a autoimmune deficiency, multi organ disease, with no cure, only treatments and meds to help slower the progression, prolong life expectancy, and to help better the quality of life. Life expectancy for someone with CF is in the mid 30's to date.
Kobe has been fairly healthy over the years to CF standards, never (miraculously)having been hospitalized till recently having his first hospitalization. His lungs had dramatically dropped from the upper 80th percentile to 50% within two years. A cat scan has shown severe lung scarring and bronchial damage. We were told by our CF doctor that "30%-20% is were we start talking about lung transplants with patients."
For treatment Kobe has to take 2 special multivitamins as his body does not absorb vit. ADE or K, an extra vit. D as he is deficient despite the multivitamins, and has early on set osteoporosis. Additional iron, for anemia. Chronic sinusitis, and currently working on funding for an inhaled treatment. On average an additional 35 pills a day  with food every time he eats, called enzymes, as his pancreas does not work properly in order to break down and absorb nutrients. 3-4 Ensures daily to help aid in weight gain, twice daily he does physio, one at school a trained teacher does his Thera Pep system that is a breathing apparatus and technique, than later at night I do his nebulizer with a inhaled medication followed by chest and back clapping to help aid in thinning, loosening the thick mucus build up in his lungs to cough up and out to help prevent lung infections. He tires easily as his body works harder due to low lung function, as they take and use all his calorie intake to function.
The Thera Pep system is a very effective treatment for aid in lung therapy in Canada, used and covered financially. The problem for Kobe is that not only does he suffer from Cystic Fibrosis, he also suffers from a severe learning disability and struggles to understand the steps and concentration to use the Thera Pep efficiently to be fully productive for him. The doctors and I believe that he would also benefit with the vest therapy (unfortunately not covered) in addition to the Thera Pep.  The vest airway clearance is a vest worn connected to two hoses to a machine that inflates the vest and uses air pressure and pulses create compressions that loosen, thin and move mucus from his lungs.
Using these two therapies together with all his other meds and treatments, we are hopefull that this will better his chance and quality of life, to continue to progress from the young sweet, funny, happy, helpfull, intelligent, caring young little man he is, on into adulthood.
I am forever grateful for your kindness, whether in monetary, or of shares to help spread awareness and word. Thank you so much for helping give our son a chance at a better quality of life, much love from my family to yours.

Thank you. Sarah