I am Laura Landi and I am running the TCS New York City Marathon with Team AFBS to stand with the Nemaline Myopathy community and support children, teenagers and adults who face daily challenges because of this disease.

I had the chance to be Cecilia's teacher at school for two years, a girl who was born with Nemaline Myopathy, which is a rare muscle disorder that affects breathing, swallowing, and mobility and I am running to stand with her and her family, to turn miles into momentum for real change.

A Foundation Building Strength is the only organization 100 percent focused on finding treatments for Nemaline Myopathy. Right now they are leading a historic research effort to advance gene therapy and prepare for clinical trials. Their commitment of millions toward research is the most important step we have toward effective treatments that could transform lives.

Every step I take on TCS New York City Marathon is about building strength for the NM community. I am pouring my energy, training and heart into this race and I’m honored to be part of a team that is channeling determination into action and helping accelerate the science that could change lives.

Please join me in supporting A Foundation Building Strength!

Your donation goes directly to research and brings us closer to breakthroughs that matter.

Donate today and help us run toward a future with effective treatments for Nemaline Myopathy.