I am running the Brighton Half Marathon to raise funds to support the ED Society. Both myself and now our little Ivy-Mae have a rare genetic condition called Ectodermal Dysplasia. The ED Society has supported us as a family and continue supporting other ED families.

Do you want to join me in making a difference? I'm raising money in aid of Ectodermal Dysplasia Society and every donation will help. Thank you in advance for your contribution to this cause that means so much to me.

More information about Ectodermal Dysplasia Society: The Ectodermal Dysplasia Society provides information, advice and support to those affected by Ectodermal Dysplasia. The ED Society promotes the education of the medical profession and general public, supports research, produces regular newsletters, liaises with the Charity's Medical Advisory Board, supports members in negotiations for financial aid/other services, encourages a network for mutual support and maintains website.