
Running for CTNNB1 research
Donation protected
Hey everyone, I will be entering a full marathon on the 27th of February to raise money for the CTNNB1 Foundation.
My close friend's 1 year old son Teddy was recently diagnosed with CTNNB1 Syndrome, which can lead to severe impairments affecting nearly every aspect of life, including the ability to speak, walk, eat, and engage socially. This Syndrome is extremely challenging and Teddy's development physically and mentally is uncertain at this stage - which is why supporting research into this Syndrome is so important to many families across the globe.
This foundation raises funds for the development of gene therapy with the goal of finding a cure for rare genetic conditions for which there is currently no cure and minimal treatment. Money raised goes directly to ground-breaking research being carried out around the world, including right here at the University Of Sydney and Children's Medical Research Institute.
So please consider donating to the cause - and as a sweetener I will destroy my legs over 42kms of concrete.
Thanks!
My close friend's 1 year old son Teddy was recently diagnosed with CTNNB1 Syndrome, which can lead to severe impairments affecting nearly every aspect of life, including the ability to speak, walk, eat, and engage socially. This Syndrome is extremely challenging and Teddy's development physically and mentally is uncertain at this stage - which is why supporting research into this Syndrome is so important to many families across the globe.
This foundation raises funds for the development of gene therapy with the goal of finding a cure for rare genetic conditions for which there is currently no cure and minimal treatment. Money raised goes directly to ground-breaking research being carried out around the world, including right here at the University Of Sydney and Children's Medical Research Institute.
So please consider donating to the cause - and as a sweetener I will destroy my legs over 42kms of concrete.
Thanks!
Organizer
Brandon Merhab
Organizer
Collaroy, NSW