Frederik is an artist, an entrepreneur, and above all an incredible human being. He is a real fighter and a personal hero of mine.

 

Frederik has been suffering from a mitochondrial disease since the age of 14 and I’ve seen him fight fiercely against it ever since. Some of the daily challenges that Frederik must face include losing his ability to walk, eat and see.

 

This Saturday, I will be participating in my first half Iron Man. That is, I’ll be swimming 2km, cycling 90km, and running 21km.

 

Please support me by donating to The PolG Foundation. The mission of The PolG Foundation is to support and accelerate research to find effective treatments and a cure for POLG-related mitochondrial disorders.

 

Check out @curepolg and please help us raise funds and awareness.

 

Any contribution takes us a step closer to #curePolG.

 

Thanks,

 

Sete

 

Instagram: https://www.instagram.com/curepolg/?hl=en

Website: https://l.instagram.com/?u=https%3A%2F%2Fpolgfoundation.org%2F&e=ATMS8W-o4aCbtXkFv4IW_iQSZtMZSzs1AiUq9JB2xZqoe7gnhhqPfLEiPuySTxSMbOnaFt2sShiwjTLrPFj2pA&s=1