Main fundraiser photo

Running 18 miles in 18 days before my 18th birthday

Hello, my name is Ellie! I would love to raise awareness and much needed money for POTS UK to prove to myself not only can I do things I would have never imagined myself doing, but also to show to so many people out there that anything is possible! Ever since I was little, I have always been active and energetic, however in 2021 I became unwell and had a constant feeling of dizziness, feeling sick and my heart rate was extremely high. I ended up in hospital and after many tests and investigations it was discovered through a tilt- table test that I have POTS (postural orthostatic tachycardia syndrome) I was 13 years old, I was scared I would never be able to dance again and live my teenage years how I wanted to. I wasn’t able to exercise for ages and it came along with other medical conditions. After feeling sorry for myself, I decided the only person who could change was myself. I attended physio therapy, went on medication drank litres of water everyday and actually listened to what they told me to do! Fast forward to today, I am able to dance again, attend the gym and perform on stage. I would love to sit down and talk to my younger self and tell her that things really do improve. I live with POTS everyday, but I have come so far in my journey since the beginning and would like to prove to myself and everyone else that things really do get better!
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    Organizer

    Ellie Boyce
    Organizer
    England
    PoTS UK
    Beneficiary

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