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MY NAME IS KEVIN DELONG. I WILL RUN IN A 50 MILE ULTRA MARATHON THRU LAKE CHABOT CALIFORNIA. OCT 10TH IS THE RACE WITH ELEVATIONS REACHING OVER 7000 FEET. I STARTED TRAINING ON AUGUST 10 2005. THE FURTHEST OVE RAN IN THE PAST 12 YEARS IS A
10K ABOUT TWO MONTHS AGO. HERE IS WHY I AM RUNNING AND WHO THE MONEY WILL BE GOING TO. THE MONEY RAISED WILL GO TO LIL GARRETT FOR THINGS TO BUY FOR HIMSELF TO BOOST HIS MORAL. I WILL SET SOME ASIDE FOR A SAVINGS FOR HIS FAMILY TO PLACE AS THEY SEE FIT FOR SOME KIND OF AN INVESTMENT IN HIS FUTURE. THANK YOU ALL FOR YOU CARING DONATING AND SHARING.
Garrett was 10 months old when a MRI revealed an extremely large cyst on the left side of his brain. The neurosurgeon said it was to risky to remove it so a Shunt was placed to drain the cyst. Almost a year later a followup scan revealed a new diagnosis that was a hard one to sallow, Chiari Malformation, Garrett's cerebellum was slumping out the back of his skull and pushing down onto his vertebrae. Over the next few months Garrett started having severe headaches that would stop him in his tracks, his pain was getting worse and our fun loving 2 yr old couldn't partake in any activity without having to lay down and cry in pain! Our Neurosurgeon told us the Chari was getting worse and surgery was needed! After his 3rd birthday in October 2013, Garrett went in for brain surgery to try and make room for his slumping brain. He healed nicely and we thought our crazy boy was back!! He wasn't allowed to jump on trampolines, play contact sports, and avoid jarring, but beyond that he was a normal 3 yr old again! Unfortunately last fall symptoms started to creep back and at age 4 he again started having debilitating headaches. When we finally got an MRI in January 2015 our NS told us the first surgery seems to not be giving the results he wants to see so Garrett would need to undergo a second brain surgery and this time they would be more invasive to hopefully get better results! So February 27 2015 'G' had his third brain surgery! It was a long hard recovery but the entire time Garrett absolutely blew our minds with his bravery and through it all he smiled! We were all very hopeful and proud to watch our fighter overcome his circumstances!
In April G returned to preschool and although he needed to go a bit slower he was ECSTATIC to be back up and playing! Unfortunately we started noticing a new type of headache, not activity induced but G would go down for days at a time and they slowly got worse and worse! We ended up taking Garrett to the ER on several occasions, every time we were admitted into hospital after discovering his inter-cranial pressure was 5 times what it should be! G would under went weeks in and out of the hospital, another surgery, endless tests, and another diagnosis of hydrocephalus as his doctors struggled to find out why his pressure was sky rocketing! As his parents we made the decision to take him to UCSF Pediatric Brain Center for more answers! In June Gs new team of docs preformed another surgery in hopes that a second shunt would be the end to his pain! What a summer Garrett had!! He was pain free and loved every second once he had healed! And again Garrett's journey wasn't over! In August, weeks before his 5th birthday his pressure headache came back and we spent a week at UCSF! G fought through yet another surgery and his doctors tell us that if the pressure returns they believe they will have to make the decision to remove the cyst completely! We aren't there yet and we are again hopeful that the pressure wont return and we can enjoy our goofy Garrett pain free for a long time!
Garrett wears his "stitches" with pride, we teach him to be proud of his story it makes him awesome and special! No child should endure pain and our G handles it with the strength of 100 men!! Even his doctors mention how amazing Garrett handles pain! Garrett loves to be a boy and run jump and play and he is often in a situation where he cant! He understands and adapts to his restrictions. He has a love for music and is incredibly imaginative! Garrett deserves to live a normal carefree life and he makes the best of his situation and inspires us everyday!!
10K ABOUT TWO MONTHS AGO. HERE IS WHY I AM RUNNING AND WHO THE MONEY WILL BE GOING TO. THE MONEY RAISED WILL GO TO LIL GARRETT FOR THINGS TO BUY FOR HIMSELF TO BOOST HIS MORAL. I WILL SET SOME ASIDE FOR A SAVINGS FOR HIS FAMILY TO PLACE AS THEY SEE FIT FOR SOME KIND OF AN INVESTMENT IN HIS FUTURE. THANK YOU ALL FOR YOU CARING DONATING AND SHARING.
Garrett was 10 months old when a MRI revealed an extremely large cyst on the left side of his brain. The neurosurgeon said it was to risky to remove it so a Shunt was placed to drain the cyst. Almost a year later a followup scan revealed a new diagnosis that was a hard one to sallow, Chiari Malformation, Garrett's cerebellum was slumping out the back of his skull and pushing down onto his vertebrae. Over the next few months Garrett started having severe headaches that would stop him in his tracks, his pain was getting worse and our fun loving 2 yr old couldn't partake in any activity without having to lay down and cry in pain! Our Neurosurgeon told us the Chari was getting worse and surgery was needed! After his 3rd birthday in October 2013, Garrett went in for brain surgery to try and make room for his slumping brain. He healed nicely and we thought our crazy boy was back!! He wasn't allowed to jump on trampolines, play contact sports, and avoid jarring, but beyond that he was a normal 3 yr old again! Unfortunately last fall symptoms started to creep back and at age 4 he again started having debilitating headaches. When we finally got an MRI in January 2015 our NS told us the first surgery seems to not be giving the results he wants to see so Garrett would need to undergo a second brain surgery and this time they would be more invasive to hopefully get better results! So February 27 2015 'G' had his third brain surgery! It was a long hard recovery but the entire time Garrett absolutely blew our minds with his bravery and through it all he smiled! We were all very hopeful and proud to watch our fighter overcome his circumstances!
In April G returned to preschool and although he needed to go a bit slower he was ECSTATIC to be back up and playing! Unfortunately we started noticing a new type of headache, not activity induced but G would go down for days at a time and they slowly got worse and worse! We ended up taking Garrett to the ER on several occasions, every time we were admitted into hospital after discovering his inter-cranial pressure was 5 times what it should be! G would under went weeks in and out of the hospital, another surgery, endless tests, and another diagnosis of hydrocephalus as his doctors struggled to find out why his pressure was sky rocketing! As his parents we made the decision to take him to UCSF Pediatric Brain Center for more answers! In June Gs new team of docs preformed another surgery in hopes that a second shunt would be the end to his pain! What a summer Garrett had!! He was pain free and loved every second once he had healed! And again Garrett's journey wasn't over! In August, weeks before his 5th birthday his pressure headache came back and we spent a week at UCSF! G fought through yet another surgery and his doctors tell us that if the pressure returns they believe they will have to make the decision to remove the cyst completely! We aren't there yet and we are again hopeful that the pressure wont return and we can enjoy our goofy Garrett pain free for a long time!
Garrett wears his "stitches" with pride, we teach him to be proud of his story it makes him awesome and special! No child should endure pain and our G handles it with the strength of 100 men!! Even his doctors mention how amazing Garrett handles pain! Garrett loves to be a boy and run jump and play and he is often in a situation where he cant! He understands and adapts to his restrictions. He has a love for music and is incredibly imaginative! Garrett deserves to live a normal carefree life and he makes the best of his situation and inspires us everyday!!
Organizer and beneficiary
Lindsey lowman
Beneficiary