Run For Rhianna: Ehlers Danlos Awareness Month 2025

In January 2021, our sister Rhianna passed away in our hands as a result of a catastrophic hemorrhagic stroke from underlying Vascular Ehlers Danlos Syndrome (VEDS). She was only 36 years old.

Join our 2025 fundraising tilt in support of Ehlers Danlos Awareness Month and Connective Tissue Disorders Network Australia (CTDNA). CTDNA is a small organisation, established in early 2024 and is completely volunteer run. CTDNA seeks to establish a national network of lived experience advocates, healthcare professionals and researchers with an interest in HCTD. A network of like minded individuals coming together to better the care and management of Australians impacted by HCTD.

Please make a donation of any amount you can - it will all go directly to CTDNA in Rhianna's memory.

We appreciate it so very much!

Always - The Girls xxxxx