Run For Parker
Donation protected
We are good friends Ben and Paddy who are aiming to raise funds for Cystic Fibrosis South Australia (CFSA) by running the Melbourne Marathon on the 14th October 2018.
Close friends of ours recently welcomed their first son Parker into the world who was diagnosed with cystic fibrosis. This little legend and his family have a big journey ahead of them and have bravely begun it with so much strength and positivity. As close friends inspired by this we want to do our bit to help raise funds and awareness to make the journey a little easier for them and other families in South Australia. Here is some further information from CFSA:
Cystic Fibrosis is a life-shortening condition for which there is no cure. In Australia, every four days a child is born with cystic fibrosis and they face a lifetime of breathing difficulties, chest infections and digestive issues. People with CF can take up to a wheelie bin full of medication a year. Despite major advances in the treatment of CF, 50% of people with CF will not survive past their 20’s. CFSA is the community-based charity supporting people living with CF, their families and carers. A diagnosis of CF is a traumatic event for parents, grandparents and siblings. CFSA provides services to our community to achieve our vision of ‘Lives unaffected by Cystic Fibrosis’. Services that CFSA provides to our members include subsidised essential medical equipment & pharmaceuticals, gym memberships and exercise equipment, education grants, assistance with transplant related expenses, boredom buster bags, home & hospital visits, advocacy, education, information and community awareness.
We are training hard and hoping to raise big funds to be donated to Cystic Fibrosis South Australia!
Close friends of ours recently welcomed their first son Parker into the world who was diagnosed with cystic fibrosis. This little legend and his family have a big journey ahead of them and have bravely begun it with so much strength and positivity. As close friends inspired by this we want to do our bit to help raise funds and awareness to make the journey a little easier for them and other families in South Australia. Here is some further information from CFSA:
Cystic Fibrosis is a life-shortening condition for which there is no cure. In Australia, every four days a child is born with cystic fibrosis and they face a lifetime of breathing difficulties, chest infections and digestive issues. People with CF can take up to a wheelie bin full of medication a year. Despite major advances in the treatment of CF, 50% of people with CF will not survive past their 20’s. CFSA is the community-based charity supporting people living with CF, their families and carers. A diagnosis of CF is a traumatic event for parents, grandparents and siblings. CFSA provides services to our community to achieve our vision of ‘Lives unaffected by Cystic Fibrosis’. Services that CFSA provides to our members include subsidised essential medical equipment & pharmaceuticals, gym memberships and exercise equipment, education grants, assistance with transplant related expenses, boredom buster bags, home & hospital visits, advocacy, education, information and community awareness.
We are training hard and hoping to raise big funds to be donated to Cystic Fibrosis South Australia!
Organizer
Ben Scudds
Organizer
Marino, SA