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This beautiful little girl is our friend Abigail Means. Like many four year-olds, she likes playing, swimming, animals - especially horses, her Raggedy Ann doll, and . . . Disney Princesses. But like Cinderella at the Ball, Abigail's time is running out.
Abigail has Sanfilippo Syndrome, a rare genetic disorder where her body does not produce lysosome to rid her body of waste & toxins.
There is no cure, or even treatment to slow the progression of the disease. Abigail's docotor, Dr. T. Andrew Burrow, assistant professor of clinical pediatrics at Cincinnati Children’s Hospital Medical Center, said, it is 100% fatal.
As her Mom, Jen Means said, "She is dying." But before that, "she'll slowly regress. Lose speech. Lose walking."
Abigail has already started to lose her hearing, and has forgotten numbers and colors.
Before time runs out, be a Fairy Godmother, and help send Abigail and her family on a Florida Adventure, where they will get to visit with Princesses, see amazing animals, play in the sand, and splash in the ocean.
But most importantly, Abigail will get to enjoy these things while she still can, and for her family, Mom, Jen, Dad, Mike, and baby sister Sadie, they will be able to make memories that will need to last them a lifetime.
We have one month to raise the funds for this trip.
Please contribute - every donation helps!
WCPO Cincinnati Channel 9 coverage of Abigail's story
http://www.wcpo.com/news/region-northern-kentucky/abigail-means-family-friends-race-for-cure-of-little-girls-deadly-genetic-disorder
Abigail has Sanfilippo Syndrome, a rare genetic disorder where her body does not produce lysosome to rid her body of waste & toxins.
There is no cure, or even treatment to slow the progression of the disease. Abigail's docotor, Dr. T. Andrew Burrow, assistant professor of clinical pediatrics at Cincinnati Children’s Hospital Medical Center, said, it is 100% fatal.
As her Mom, Jen Means said, "She is dying." But before that, "she'll slowly regress. Lose speech. Lose walking."
Abigail has already started to lose her hearing, and has forgotten numbers and colors.
Before time runs out, be a Fairy Godmother, and help send Abigail and her family on a Florida Adventure, where they will get to visit with Princesses, see amazing animals, play in the sand, and splash in the ocean.
But most importantly, Abigail will get to enjoy these things while she still can, and for her family, Mom, Jen, Dad, Mike, and baby sister Sadie, they will be able to make memories that will need to last them a lifetime.
We have one month to raise the funds for this trip.
Please contribute - every donation helps!
WCPO Cincinnati Channel 9 coverage of Abigail's story
http://www.wcpo.com/news/region-northern-kentucky/abigail-means-family-friends-race-for-cure-of-little-girls-deadly-genetic-disorder

