Rowan’s Battle with PMG & CAD Deficiency

Hello Everyone, My name Desiree. I’m asking for donations to help raise money for my close friend's daughter and 4-year-old granddaughter, Rowan. Rowan has an extremely rare condition, Polymicrogyria (abnormal development of a brain lobe) and CAD Deficiency (a genetic disorder that prevents the body from producing a chemical that the brain needs to grow and function). Rowan is only 1 of 20 known children in the world with CAD Deficiency. Rowan was born September 19, 2018. As an infant, she had little spasms that her mom, Kelsie, thought were seizures, but they were dismissed by doctors. On June 26, 2020, Rowan had a tonic-clonic seizure (a seizure that lasts longer than 5 minutes) and continued to have them. In August 2020, Rowan had an MRI and it showed she had PMG in the frontal left lobe. In rare cases, PMG can cause seizures. Rowan is considered non-verbal, but she can say some words. On September 25, 2021, Rowan woke up and her right eye was suddenly crossed inward. Another MRI was done, but nothing was found. Rowan went 9 months without a seizure, then in June 2022 she started having them frequently. All were tonic-clonic seizures. On October 30, 2022, Rowan stopped walking. Starting in the middle of November 2022, Rowan started being hospitalized 2-3 times a month. The seizures kept progressing. Rowan has been in and out of the hospital, and was admitted to Boston Childrens hospital in March 2023. At Boston Childrens, genetic testing was rushed, and it was found that Rowan also has a rare genetic disorder that causes CAD deficiency. This genetic disorder prevents the body from producing a chemical that the brain needs to grow and survive. There are very few cases of this deficiency in the world, but in past research, Uridine has been successful in treating this deficiency. Rowan's mom, Kelsie, is a single mom that has been let go from her job of 5 years because of all the time she needed to take off for Rowan's health condition. No parent should have to worry about money when their baby is sick. Kelsie Ward is an amazing person who would do anything for anyone in need. She won't ask for anything from anyone but she needs our help. Rowan has a long road ahead of her. Every time she starts to progress with talking and walking, she has another seizure. Below is the go fund me page created for Kelsie and Rowan. This will help Kelsie with her financial needs while Rowan is in and out of the hospital and until they find the correct cocktail of medicine that will slow the seizures. Any amount helps. Thank you for your time and support. -Desiree