Rosbel’s Crohn’s Disease Remission Mission
Donation protected
Hello fellow mortals, bloody ass holes and angels. I sat long and hard, much like a constipated colon, contemplating if I’d allow my pride to take a hike, humble myself and ring out this pressing issue.
So here I am, asking for anyone’s help at the worst possible time of the year-
I haven’t been able to work consistently for a few months now cause i’ve been battling symptoms of this autoimmune illness called Crohn’s Disease which is an Inflammatory Bowl Disease (IBD)
At the start of this December my symptoms had gotten so bad i was admitted to the hospital and had to accept the aid of the hard working hospital workers at North Central Hospital in the Bronx as well as Jacobi Hospital oncology ICU. I ended up staying in the hospital from December 5th til the night of the 18th. Within those two weeks I had to under go several blood transfusions, iron transfusions and receive Iv steroids and fluids to combat the severity of my condition. On The night of December 9th my biologic treatment had to be delayed for a few weeks due to my catching influenza in the hospital which only exasperated my IBD symptoms and prolonged my stay since steroids slow down the bodies immune response and a person can’t receive biologic treatment while fighting off another illness cause it will make matters worse.
I’m grateful to be out of the hospital now, i do have a treatment plan in place, though it’s not an over night fix. It can take several weeks to begin seeing results from a treatment. I’m hopeful that when I receive my biologic treatment towards the end of this month that I can finally get off of the prednisone which i’ve been on for several months now so it’s loosing it’s effectiveness.
During my time in the hospital I managed to get some writing done; Poetry, journaling my experience and writing monologues. I plan to share some of this personal writing when the time is right and use that creativity to raise up voices. I’m very familiar with the heavy blanket of shame, self pity and disgust that comes with mentally handling the reality of this disease.
Anyone living with an inflammatory Bowl Disease; Crohns or Ulcerative Colitis can tell you, these symptoms completely strip your normal and social life away from you when things take a turn for the worst. It can be very challenging to open up to others about it cause many won’t understand. There’s no one sure fix for everyone. Every person is dealing with their own over active immune system lvls and challenges-so my heart, and throbbing anus goes out to other survivors of this PAIN IN THE ASS disease. I see you-I love you- peace be with you all!
( I will be investing these donations towards feeding myself, medication copays, transportation expenses to hospital visits, bills, and feeding my passion for personal art; Expenses related to getting my writing on it’s feet in theatre spaces/ open mics, as i am a creative that hopes my writing will resonate with others and relieve some held in tensions and loosen their trauma knots.)
Every time someone accepts help beyond their own capabilities they are fighting for survival and fighting for the chance to live a full life outside of hospital care; This is me completely dropping my guard and admitting I need serious help. If you or someone you know may be struggling with symptoms of IBD i strongly urge you to do all you can to keep fighting. knowing when to ask for help is a strength not a weakness. Don’t be afraid of colonoscopies- cancer screenings are critical- if i can make it through 4 colonoscopies while awake- and only loosely sedated- you can do your first- throw your shame and pride off a damn cliff cause it may just save your life and get you on the right track.
I love you all for just taking the time to listen to my story. ❤️
————————————————————————
Please Donate literally anything you can- i won’t be offended if you just send me a nice message to boost my spirits either,
Rosbel Cantebury Preece Franklin / Rozie Roz
…………………………………………………………………….
So here I am, asking for anyone’s help at the worst possible time of the year-
I haven’t been able to work consistently for a few months now cause i’ve been battling symptoms of this autoimmune illness called Crohn’s Disease which is an Inflammatory Bowl Disease (IBD)
At the start of this December my symptoms had gotten so bad i was admitted to the hospital and had to accept the aid of the hard working hospital workers at North Central Hospital in the Bronx as well as Jacobi Hospital oncology ICU. I ended up staying in the hospital from December 5th til the night of the 18th. Within those two weeks I had to under go several blood transfusions, iron transfusions and receive Iv steroids and fluids to combat the severity of my condition. On The night of December 9th my biologic treatment had to be delayed for a few weeks due to my catching influenza in the hospital which only exasperated my IBD symptoms and prolonged my stay since steroids slow down the bodies immune response and a person can’t receive biologic treatment while fighting off another illness cause it will make matters worse.
I’m grateful to be out of the hospital now, i do have a treatment plan in place, though it’s not an over night fix. It can take several weeks to begin seeing results from a treatment. I’m hopeful that when I receive my biologic treatment towards the end of this month that I can finally get off of the prednisone which i’ve been on for several months now so it’s loosing it’s effectiveness.
During my time in the hospital I managed to get some writing done; Poetry, journaling my experience and writing monologues. I plan to share some of this personal writing when the time is right and use that creativity to raise up voices. I’m very familiar with the heavy blanket of shame, self pity and disgust that comes with mentally handling the reality of this disease.
Anyone living with an inflammatory Bowl Disease; Crohns or Ulcerative Colitis can tell you, these symptoms completely strip your normal and social life away from you when things take a turn for the worst. It can be very challenging to open up to others about it cause many won’t understand. There’s no one sure fix for everyone. Every person is dealing with their own over active immune system lvls and challenges-so my heart, and throbbing anus goes out to other survivors of this PAIN IN THE ASS disease. I see you-I love you- peace be with you all!
( I will be investing these donations towards feeding myself, medication copays, transportation expenses to hospital visits, bills, and feeding my passion for personal art; Expenses related to getting my writing on it’s feet in theatre spaces/ open mics, as i am a creative that hopes my writing will resonate with others and relieve some held in tensions and loosen their trauma knots.)
Every time someone accepts help beyond their own capabilities they are fighting for survival and fighting for the chance to live a full life outside of hospital care; This is me completely dropping my guard and admitting I need serious help. If you or someone you know may be struggling with symptoms of IBD i strongly urge you to do all you can to keep fighting. knowing when to ask for help is a strength not a weakness. Don’t be afraid of colonoscopies- cancer screenings are critical- if i can make it through 4 colonoscopies while awake- and only loosely sedated- you can do your first- throw your shame and pride off a damn cliff cause it may just save your life and get you on the right track.
I love you all for just taking the time to listen to my story. ❤️
————————————————————————
Please Donate literally anything you can- i won’t be offended if you just send me a nice message to boost my spirits either,
Rosbel Cantebury Preece Franklin / Rozie Roz
…………………………………………………………………….
Organizer
Rosbel Franklin
Organizer
Cliffside Park, NJ