Rory J. Williams- Rally for Rory Online

Our fundraiser is in support of the Williams family and their 16 month old son, Rory James who is diagnosed with Miller Dieker Syndrome (MDS) which is a condition characterized by a pattern of abnormal brain development known as Lissencephaly. MDS is a rare genetic disorder and Rory and his parents are fighting for his life. Rory battles constant daily seizures, breathing difficulty, is fed through a feeding tube and is developmentally delayed. He and his parents spend a lot of time at the hospital and need your support. Beth grew up in Prescott WI and Woodbury MN and is a nurse at United Hospital. Ta Juan is a veteran staff sergeant with the United States Marine Corp, served 3 tours in Iraq, and works for DirecTV.

Select the links below for:

More about Rory's story

Rory's story on the news (video and story)

Contact the fundraiser director: [email redacted] for any questions.

All benefit proceeds will go directly to the Ness-Williams family for Rory's needs and expenses.
  • Carolyn Valentine 
    • $50 
    • 81 mos
  • Jeanne Vogel 
    • $50 
    • 81 mos
  • Johanna Salas-Sharp 
    • $50 
    • 81 mos
  • Rita Salas 
    • $25 
    • 81 mos
  • Kathy Schoenbeck 
    • $100 
    • 87 mos
See all


Amy Anderson 
Castle Rock, CO
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