My sweet loving husband has been
diagnosed with stage 4 Ewings
We have been very quiet about Roberts cancer diagnoses. We needed time to process everything and to try and understand as much as we can ourselves.
As many of you know Robert has struggled the last 5 years with severe pain and losing the ability to use his left leg.
April 7th 2017 we went to the ER again for Roberts severe leg, back and groin pain. Having had 4 total surgeries so far to help the problem nothing seemed to be working. The ER Doctor was amazing and didn't dismiss us as just wanting pain meds. After several Test and different X-rays she found a large mass in Roberts pelvic region. Biopsy done and off to the lab for results....fast forward 4 weeks and 5 days and we recieved the news " Ewings Sarcoma" . This is a very rare cancer for adults to get and the location of the tumor is very tricky as well. Some cancer has spread to his Femur as well. The mounting cost of medical bills ( VA has not been any help and the last few visits pretty much blew us off). We have medical insurance and that has been a blessing. With our insurance not covering everything and also with Robert being out of work for an extended period of time we are going to be struggling. The future is so uncertain and scary right now. We have 7 amazing children. Our youngest is 12 and he is handling everything one day at a time. Thank you for your support and well wishes. Will keep you posted as to our progress.
About Ewings Sarcoma:
What causes Ewing sarcoma?
The exact cause of Ewing sarcoma is not fully understood. There seems to be no known risk factors or prevention measures available. However, researchers have discovered chromosomal changes in a cell's DNA that can lead to Ewing sarcoma formation. These changes are not inherited. They develop in children for no apparent reason after they are born. Ewing sarcoma is a very rare cancer in adults.
In most cases, the change involved the fusing of genetic material between chromosomes #11 and #22. When a certain piece of chromosome #11 is placed next to the EWS gene on chromosome #22, the EWS gene gets "switched on." This activation leads to an overgrowth of the cells and eventually the development of cancer. Less often, there is an exchange of DNA between chromosome #22 and another chromosome that leads to the EWS gene being turned on. The exact mechanism remains unclear, but this important discovery has led to improvements in diagnosing Ewing sarcoma.