My sister Betty and her husband Matthew have 4 beautiful kiddos. Their youngest son Robert was born with a rare duplication in his 1st Chromosome called PBX1 Mutation. 

Due to this rare genetic disorder, Robert has had on going medical issues. When Robert was born he needed to be in the NICU for respiration/breathing issues. His medical complications have continued for him and he sees medical specialists on a regular basis and he will always need to be seen by a team of specialists. 

Robert's current medical conditions are 

PBX1 Mutation Genetic Disorder 
Hyptonia (Low Muscle Tone) 
Developmental Delay 
Macrocephaly 
Pelvic Kidney 
Congenital Glaucoma 
1st Percentile for Height 
1st Percentile for weight 
Noninfective Disorders Of Pinna Bilateral
Chronic Cough
Myopia 
Serous Otitis
Aspirations with feeding 
Conductive Hearing Loss 

Matthew and Betty have had to travel to Rochester Minnesota  more frequently than they were expecting. Robert had 2 surgeries in 2019 for his Glaucoma and Stomach Malrotation and pelvic hernia. The travel to see Robert's specialists has gone from follow up every 6 months to now being at Mayo Clinic every one to two months lately. 

We are fundraising for Robert's unexpected medical expenses/ongoing medical expenses, expenses of travel, medication/prescriptions that are not covered by insurance.