ROBBIETHEBRAVE

Hey guys were do I start, our boy Robbie was only 3 years old and had his whole life ahead off him but this was tragically cut short when 4 works ago he started having problems with his ear and infections he was given antibiotics and sent home then he started having a limp. Naturally we thought nothing bad was wrong so we took him to A&E to get his hip looked at and were sent away with irritable hip and was given calpol and ibuprofen so we lived as normal then a few days later we spotted a lump about the size a 2p coin size so naturally we took him back to A&E and they said not to worry and took blood tests and scans and still told was nothing sinister everything looked ok and not to worry, they made a rapid review appointment on Wednesday were he was transferred to Sunderland hospital and had a mri scan on the Friday which they found shadows on his leg and they thought it was a bone infection called osteomyelitis which is totally curable and put him on antibiotics by IV and this is were his health deteriorated and went really flat and sleepy. Then the 15th off may the doctor come in and said this wasn't right and said this looks like cancer Sunderland kept him in for 2 days were I was begging to send him to the rvi so after then we got transferred to the rvi. They rushed him straight for a ultra scan on his stomach were they found numerous masses in his stomach and kidney, on the Monday night he was having nose bleeds and vomiting blood, the following morning he was scanned from the nose down and the results came back there was 2 masses in his heart they transferred him to freeman's were he was sedated to add his hickman lines and ventilation tube fitted, they brought him back to the ward and started noticing his eye swelling so they had to scan him again were they found more tumours 3 on his Brain and one behind his nose, so they started the cancer treatment were informed it was lymphoma which is treatable then told it was clear cell sarcoma and was responding well to the treatment, the following day was when we were told the devastating news that it was brown cell sarcoma and there was nothing they could do and to notify family members so everyone come to see him on Thursday night thinking they had a few days with him left then on the Friday he really deteriorated and he took his last breaths at 9.30pm in his mams arms.

These are words from kayleigh who is 11 weeks pregnant she wanted to let people know what that poor boy our special boy went through in his final week and as you'll know this has come as a absolute devastating news, we weren't prepared so please can people help just a little to give him the 3 year old the best send off he deserves 

#ROBBIETHEBRAVE