Rob Boisvert's Medical Fund

My name is Janine Boisvert. I am writing this on behalf of my wonderful husband Robert Boisvert. We have been married for 27 years, we have two children, Brian and Danielle, and we have two grandchildren.  In December 2015, after a barrage of doctor’s appointments, tests, and blood work he received a devastating diagnosis of Amyotrophic Lateral Sclerosis, ALS.  This diagnosis has had a massive impact on our family and has changed our lives forever.  Up until recently, we had been managing fairly well on our own with help from family, friends, doctors, and the ALS Association of CT’s equipment loan closet.  In the summer of 2017, a new drug was approved for the treatment of all ALS patients called Radicava.  It is the first time in 22 years that a drug for ALS has been approved by the FDA.   Learning about Radicava was the first time our family felt hope as it was a step towards a cure for this debilitating disease.  Unfortunately, this hope has been ripped away as we have been denied three different times for the drug by our insurance company.  Rob's doctors believe that he is a great candidate for the medication and they believe that it will help him.  We are asking for help paying for the medication.   At over $1,000 an injection, the regimen
is 2 weeks for the first cycle (14 days on medication and 14 days off medication) and 10 days for all subsequent cycles (10 days on medication and 14 days off medication).  This medication places an extreme financial burden on our family.  Our ask is very time sensitive request since Rob will turn 65 in June and we are hoping that Medicare will cover the cost of the medication.  However, we need to get him started as soon as possible in order to bring back some of the hope that was lost.  Your loving donation is greatly needed and appreciated.
  • Jeff Johnson 
    • $100 
    • 36 mos
  • Armando Binelli  
    • $250 
    • 40 mos
  • Anonymous 
    • $100 
    • 42 mos
  • Christine Anderson 
    • $50 
    • 42 mos
  • Brian Sullivan  
    • $100 
    • 42 mos
See all

Organizer and beneficiary

Steve Lentz 
New Haven, CT
janine boisvert 
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