Rex is a three year old ball of energy, joy & a dash of mischief. He loves animals, playing with cars and bossing around his older brothers. He has the sweetest spirit & has brought immense happiness to our family. On December 10th, Rex was taken to the ER after complaining about left leg pain and not able to walk. What we initially thought were growing pains or a sprained knee, turned out to be a pathological fracture caused by a tumor. The next few days were a blur of tests, MRI/CT scans, biopsies and continuous bad news. They discovered a second tumor on his adrenal glands & Rexy was diagnosed with High Risk Stage 4 Neuroblastoma.
Neuroblastoma is a very rare cancerous tumor that develops in your adrenal glands. Rexy's Cancer has spread to most of his bones and bone marrow. He showed absolutely no symptoms that he was sick until his leg started to hurt. He quickly started Chemotherapy the day after Christmas & has numerous medical mountains left to climb.
Needless to say it's been a trying time for all involved. Rex’s treatment plan requires extensive stays in the hospital where he's admitted for five days to do Chemotherapy & has multiple weekly appointments to check on his progress. He is receiving wonderful care in Portland, but the constant 1.5 hour commute to the hospital has been financially and emotionally taxing. He needs full time care at home between chemotherapy sessions and while in the hospital.
His parents Hyrum and Tiara, work tirelessly to make ends meet & provide for their three boys. Due to the severity of his condition, Rexy needs his mom who is a RN to care for him full time. With the loss of one income, the hit for medical costs, keeping the family stable and not being able to work full time for a year, Rex's family is needing our support.
He has a intense year ahead of him. In addition to the Chemotherapy he will need surgery, radiation and stem cell transplants. His circumstances are a parents worst nightmare & has been heartbreaking for his entire family. Watching our beautiful little boy struggle with all these things has been devastating. Rexy is a fighter & we humbly ask for your help so we can aide him in this fight. Whether it be help with meals, heartfelt prayers or a gracious donation we appreciate it. Ohana/‘Aiga means everything to us and we're trying to help Rex and his family through this trying time.