Retro Peritoneal Fibrosis

My daughter, Amanda, has been sick since November 2016 and has had 3 surgeries with more to come. She is a single mom of an adorable boy, Carter (pictured), who is now almost 27 months. She was hospitalized in November 2016 with acute renal failure and sepsis. Since then she has been to five doctors to find one that is familiar with this rare disease with no cure. She was finally diagnosed with Retro Peritoneal Fibrosia in January 2017. This presented itself as a baseball size tumor in her pelvis. Bilateral ureter stents were surgically inserted in early December to prevent further damage to her kidneys. Then four short days before Christmas three of her specialists operated to remove the mass, but when they got in there they soon realized the fibrosis had strangled the blood supply to her femal organs and had to perform a radical hysterectomy. Her current specialist has tried a couple of different approaches that have caused further issues with her health. She is on pain medication, high dose steroids and immunotherapy which means she catches nearly everything she is exposed to. She will continue to have operations to resolve issues that arise when the RPF affects other organs. Sometimes the pain medications don't help at all, but through all of this she has remained strong, had a positive attitude and does her best to keep Carter's life as normal as possible. We have been informed that her life will never be the same; however, we are adjusting to her "new normal."

She has well over $10,000 in medical bills from deductibles and co-insurances. Her dad and I have been helping as much as we can, but the amount seems insurmountable. Any amount you can give would be so gratefully appreciated. We are just thankful to have her with us.