Hope is a unicorn. She's one in billions. Her SMOC1 gene variant causes eye, heart, bone, and other abnormalities. What is SMOC1? This was the question Hope's parents asked upon diagnosis. Next step, of course, is research on the internet! They found medical papers naming SMOC1 but no information to help them understand. Feeling alone in the world, Dani began the daunting journey of gathering information to help her daughter.

We have all heard of Type 1 Diabetes and Breast Cancer but that was not always the case. Moms, Dads, Doctors, Scientists, and other supporters have worked tirelessly over the years to grow awareness and research for these diseases. Now there are treatment options and organizations filled with information and help for families.

This is our goal.

This is where YOU come in.

Help us raise funds to gather doctors, scientists, patients, and families. Help us bring together research, old and new, to put information into one location for easy access. Help us bring this rare disease into the research community in a big way. For Hope. For the next "Hope". For everyone.

SMOC1 Foundation for Hope

SMOC1 Foundation for Hope was established to spur on research on this gene variant and to provide information for the families dealing with the associated diseases every day. We are currently filing for 501c3 status.