The “Hell” is a disease called Idiopathic Pulmonary Fibrosis (IPF). The “Hell” is being diagnosed with this condition for which there is no cure. The “Hell” is not knowing what your future holds and how long it will be until your lungs just don’t work anymore. The “Hell” is what Renee has been living with since being diagnosed with this ruthless disease over a year ago.
BUT, there is a God ! A loving, kind, merciful God. There is Renee, an “I will never give up” person. There is the option of a lung transplant that will give her back her life. There is HOPE.
Since her diagnosis, she has followed everything that the specialists have asked. She has endured and passed every grueling test for the lung transplant and received the news that she is an “excellent candidate”. Doctors have said that if her lungs continue on the path they are on now, she will need the transplant sooner rather than later. As with any medical condition, it depends on the progression of the disease and the availability of donor lungs. Word is that the average wait time is 3-7 months. She is now on the National Lung Transplant list and is awaiting the word that donor lungs are available and to report to UCSF for the life saving surgery.
Insurance pays a good portion of the surgery, hospital costs, Doctors’s fees, some out of pocket expenses for food and lodging and med’s. She has to stay in a room close to UCSF for 6 weeks and unfortunately, insurance does not even come close to covering the cost. Her husband, Scotty will be taking off a minimum of 6 weeks as her primary care giver, staying with her the full 6 weeks (a requirement by the hospital and transplant team). Sister Lisa, will be her secondary care giver assisting Scotty and allowing him some off time now and then (also a requirement by the hospital and transplant team).
We are trying to start early in the hopes of raising what we can to help with expenses. The stress of this delicate and life saving surgery is enough to have to deal with. We’d like to ease the anxiety of the expense if we can.
She’ll get through this. We are confident about that !! She is strong and determined. She has so much to live for; a loving, dedicated husband, 3 beautiful children 12 precious grandchildren, friends from coast to coast and a family as big as Texas (okay, that’s a stretch, but the family is enormous).
We are the brothers and sisters of Renee. We are Moe, Leslie, Bob, Lisa and John. We have two siblings in heaven who are working their magic from above. They are Karen and Martin. Mom, Gloria joins us in this attempt to help Renee in any way we can. We are strong, we are hopeful, we are determined, we are FAMILY.
If you are unable to help financially, we humbly ask for your prayers, good vibes and encouraging words. Let’s show “IPF” who’s the boss !!!!
Thank-you for reading, caring, sharing and for anything you can do.
- Gloria Smellie
- Isabel Flook
- Sally Katen
- Karen Weil
Organizer and beneficiary
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