Hi, my name is Vanessa. I am Remi’s mom. She was born with femoral and radial hypoplasia. This causes her to have twisty legs. She also has a neurological condition that is suspected to be mild cerebellar hypoplasia along with epilepsy. She has a deep determination for life and is a happy girl. She gets so excited and loves her family and friends. She loves going for walks, seeing nature, her siblings, and cuddles.

She does have monthly refills for her seizure medications. Laser therapy sessions help her joints and slow down any arthritis that may come on with having hypoplasia in all her legs. We do bi-yearly blood panels to ensure her seizure medication is at therapeutic level and to check her liver.

This has helped me tremendously when she had a tooth resorption last year and needed a tooth extracted, and emergency visit to ER for her seizures last year.

This GoFundMe is used for ongoing medical care. If you wish to donate this would be a great way to help Remi and her family. Thank you so much for helping Remi get the ongoing care and support she needs.