For treatment, there are not many options after antibiotics are complete (and most doctors do not offer antibiotics for long enough to heal the co-infections), which is why they have turned to naturopathic doctors and alternative medicine. Prior to using naturopathic doctors, they saw pediatric specialists in CDC, urology, neurology, and psychiatry. They offered no answers or treatment.
Insurance does not cover most of their treatments and doctors. They use many modalities to heal and ease the pain. Each doctor's appointment (3-10 a week) is $100-$450/per appointment, per person. Insurance covers copays for some doctors, but not the alternative doctors or most naturopathic doctors. As is typical with complicated diseases such as lyme, much of the expense for patients is out of pocket, not to mention the cost of reduced work hours and travel for out of state appointments.
I have witnessed the family selling kitchen and household items to help cover some of the piling costs of care.
As a friend of Pasha's since middle school, my heart breaks to see her and Jamie suffering. I am hoping that with your generosity we can help ease some of the financial difficulties as Jamie and Pasha get the care they need to find relief from their chronic pain.
Please read this letter below from Jamie:
Thank you for being willing to help. You are very kind. My sickness hurts me every day. The doctors are not sure what all is wrong. Most say I have Lyme disease with the co-infections Bartonella and parasites and strep and mold toxicity. The sickness is like a wave of weakness and pain that washes over me every day. Sometimes it is so sharp I cry and have to lie down. I am too weak to stand or walk on my own some days. Some days I use crutches. My mom helps me to the bathroom and sleeps with me to keep me safe. I am in too much pain to go to school most days. I sometimes go once a week. I still have all A's and really love school. I have really bad pain in my pelvis that hurts so much every day. I have drastic mood swings and changes in my behavior that scare me and my mom. My mom is with me all the time when she is not working in her studio, but it is hard to care for me because she is sick with the same disease. When I am in pain, she can not leave me alone even to walk our dog. We are stuck at home most days, so it has been great that friends started a food train and some help with walking our dog. We may have to give away our bunny. We don’t have time or energy to care for our animals. I want my mom and I to get better. I know it will take a long time and it has already been too long. I probably got bit by a tick and infected back in February. Right now, we go to a doctor, chiropractor, magnet therapy place, IV place, acupuncture, and counselor. My mom even had me talk to a Shaman, psychic, and energy healer. We have other treatments we want to try. It feels like we are at a different doctor every day, but we are not better, so I still go. We take a lot of medicine and herbs. Some are gross. We rented a Bemer mat and lie down on that every day. I have to take a salt bath every night, which actually makes me feel worse before better. I am sad all the time and really sad to see mom hurting too. So this help will not only help me but also her, so I thank you for that. Finally all of you are the kindest people and I very much appreciate your help.
Your friend, Jamie
If this touches you, please make a donation to Jamie and please share this page.
Thank you so much for your donation.