
Keep Emily Heart Beating
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Hi My name is Kytarra Petty my daughter name is Emily Williams. She is 2 years old. She has Hlhs with unbalanced right Av canal . She had the Norwood/sano at 4 days old. At 4 days old she had her first cardiac arrest down for 43 mins.She had a stroke shortly after this she has CP with secondary to a stroke. Which made her weak on he left side and deaf in her right ear. She has some hearing lost in her left hear. She will be getting hearing aids later this month.She had the left diaphragm plication at 12 days old. She also had the nissen and g-tube placement when she was 2 months old. She had her RPA balloon at 2 months old. She got discharged for the NICU at 4 at months old. Three weeks later she was in hospital for 3 days due to vomiting. Home for another three weeks then back to the hospital for 6 weeks due to turning blue and blood in her stool . Again in the hospital for 2 weeks later for 3 days due to vomiting.She had the Glenn shunt done at 6 months old. She had very poor weight gain she is only 15 pounds. She still vomits threw her nissen. She also have a milk protein allergy. This is Emily second LONGEST being home 6 weeks. On Aug. 15 Emily came to the hospital due to vomiting late that day she got a fever at 102.8 They Couldn't break her fever. She had a high heat rate all night long. Next Day On August 16 they work on her all day long to keep her stable. At 4:00pm that day she went to her second cardiac arrest down for 13 mins. they work on her for 6 hours to get her stable and to make sure she was stable who I can see her. For the first 72 hours. Her doctor didn't know if she was going to make it or not. Ten days later she was on the vent. She has been the hospital for a month right now and still going strong. On Sept .21 Emily was discharge for 9 days. Came back on Sept. 30 was back in the hospital due to vomiting. The plans is to get discharge on Monday Oct. 28, 2013 Right before her first b-day on Nov 2, 2013. From Oct 28,2013 to Dec 2,2013 Emily was home doing well. Then on Dec 2,2013 she had a cardiac cath. They put a lpa in at that time. She then got discharge on Dec 3 ,2013 From Dec 3,2013 to Feb 14,2014 Emily was home. The first time Emily being home for 9 weeks! Then she got really sick vomiting all the time losing weigh. In the hospital from feb 14, 2014 to feb 26,2014. On march 13 Emily got really sick. She had a 10.4 fever due to infection in her tummy. Emily was in the hospital from march 13, 2013 to marc h 31,2014. Emily has been home now for 2 weeks. After that she was in the hospital apirl, june, july, aug spet oct. So this year the only months she hasn't been in the hospital is jan may and nov. Right now she is getting ready for her last open heart surgery. In Dec. She got two blood stream infection and one heart in infection she was iv antibiotics for 12 weeks straight. This year she has been the hospital for the month of Jan and feb and march due to having rsv and the flu. So far she has need home for 2 weeks now. So she waiting on her lat open heart surgery. Please donate for me can have food and a place to stay when she in the hospital.
Organizer
Kytarra Petty
Organizer
Sacramento, CA