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In loving memory of Regan

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Regan was born with congenital heart disease which was a symptom of Williams Syndrome. Williams Syndrome is a rare genetic condition affecting 1 in 10,000. Little Regan fought through 2 open heart surgeries with more strength than we could have ever imagined. He wanted to be here just as much as his Mum, Dad and big Brother. 

Unfortunately on December 22nd at just 3 months old, baby Regan took his last breaths in his mummas arms. No parent should ever have to go through this. Anyone that knows this family knows what amazing parents Kirsten and Ryan are and how they are always there to support their friends and family.

We have started this go fund me in the hopes of raising some funds to help this beautiful family during this incredibly hard time. They have had to have time off work, multiple hospital expenses and now funeral expenses and we want to lift some of the financial burden off them. 

Please donate in lieu of flowers. If you can spare even a few dollars towards helping this gorgeous family, I would be forever thankful.  Money raised will go towards covering some of the ever growing expenses and we would also like to make a donation in Regans name to the Williams Syndrome Association to assist with research and support for other families with family members living with WS.

You can find more information on WS here https://williams-syndrome.org/what-is-ws/general-information 

Rest peacefully Regan. You touched many people and will forever be remembered. We love you. 

 

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    Organizer and beneficiary

    Elizabeth Meyer
    Organizer
    Bargo, NSW
    Kirsten Haran
    Beneficiary

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