Red Riley Memorial Fund
Donation protected
Dear Friends,
A couple weeks ago, Riley Stridel, age 3 and a half, passed away from Malrotation Volvulus. Malrotation effects the digstive system, in which the intestines twist and become obstructed, and can cut off blood supply.
About 1 in 500 babies are born with this genetic disorder. Some children don't have symptoms until they are older, and some never have symptoms. Some may live with malrotation their whole life and never know they have it.
Riley was a beautiful vibrant, curious and sweet girl who's life ended much too soon. She loved to play with her twin sister Skylar and adored her new sister, 8 month old Teagan. Her parents, Laurence and Charlotte Stridel and everyone who knew her, will miss her laughter and delightful, bright personality that brought them such joy.
My name is Adriana. Laurence and Charlotte are very close friends of mine. I have known Laurence for over 30 years now, ever since I was about Riley's age. They are the kindest, most amazing people you have ever met and are always there for you when you need it. It breaks my heart that something this tragic could happen.
There has been such an unbelieveable outpouring of love and support from their friends and family asking how they can help. So many have given great suggestions and mentioned possibly donating money, but were unsure how to go about it. I thought this would be the best way to give back to other children suffering from this same condition or from other related rare diseases.
So where will the money raised be donated? Since this is in memory of Riley, Laurence and Charlotte will have the opportunity to decide which foundation/cause they hold closest to their hearts.
Through my research, I found that perhaps these may be good options, but I will leave it up to them to decide. There have been so many wonderful ideas to honor Riley. I will include those here, in addition to the others below
Charities, Non-profit Organiztions:
John Hopkins Pediatrics, Gastrointestinal
St. Judes Research
National Organization for Rare Disorders
Foundation for the National Institution of Health - Precision Divison (improving knowledge of how genes work, leading to therapy for genetic makeup of a specific disease)
America's Charities Cause Fund for Children www.charities.org/funds/children
Others:
Riley Scholarship Fund
Let's keep the memory of Riley alive and help support our good friends Laurence and Charlotte. I know they will be very grateful knowing how much we care and that we are all doing what we can to help other children who are suffering.
Please give what ever amount you feel comfortable with. If you have questions or need me to elaborate on anything, feel free to reach out to me or Fred Koh.
Thank you from the bottom of my heart.
To find out more about Malrotation you can check out this link: www.hopkinschildrens.org/malrotation-or-volvulus.aspx
A couple weeks ago, Riley Stridel, age 3 and a half, passed away from Malrotation Volvulus. Malrotation effects the digstive system, in which the intestines twist and become obstructed, and can cut off blood supply.
About 1 in 500 babies are born with this genetic disorder. Some children don't have symptoms until they are older, and some never have symptoms. Some may live with malrotation their whole life and never know they have it.
Riley was a beautiful vibrant, curious and sweet girl who's life ended much too soon. She loved to play with her twin sister Skylar and adored her new sister, 8 month old Teagan. Her parents, Laurence and Charlotte Stridel and everyone who knew her, will miss her laughter and delightful, bright personality that brought them such joy.
My name is Adriana. Laurence and Charlotte are very close friends of mine. I have known Laurence for over 30 years now, ever since I was about Riley's age. They are the kindest, most amazing people you have ever met and are always there for you when you need it. It breaks my heart that something this tragic could happen.
There has been such an unbelieveable outpouring of love and support from their friends and family asking how they can help. So many have given great suggestions and mentioned possibly donating money, but were unsure how to go about it. I thought this would be the best way to give back to other children suffering from this same condition or from other related rare diseases.
So where will the money raised be donated? Since this is in memory of Riley, Laurence and Charlotte will have the opportunity to decide which foundation/cause they hold closest to their hearts.
Through my research, I found that perhaps these may be good options, but I will leave it up to them to decide. There have been so many wonderful ideas to honor Riley. I will include those here, in addition to the others below
Charities, Non-profit Organiztions:
John Hopkins Pediatrics, Gastrointestinal
St. Judes Research
National Organization for Rare Disorders
Foundation for the National Institution of Health - Precision Divison (improving knowledge of how genes work, leading to therapy for genetic makeup of a specific disease)
America's Charities Cause Fund for Children www.charities.org/funds/children
Others:
Riley Scholarship Fund
Let's keep the memory of Riley alive and help support our good friends Laurence and Charlotte. I know they will be very grateful knowing how much we care and that we are all doing what we can to help other children who are suffering.
Please give what ever amount you feel comfortable with. If you have questions or need me to elaborate on anything, feel free to reach out to me or Fred Koh.
Thank you from the bottom of my heart.
To find out more about Malrotation you can check out this link: www.hopkinschildrens.org/malrotation-or-volvulus.aspx
Organizer and beneficiary
Adriana Lora
Organizer
Gaithersburg, MD
Laurence Streidel
Beneficiary