My beautiful neice Rebecca Clare was born with a rare carniofacial condition called Aperts syndrome.

From the moment she was born she lite up our lives, and we new she was a fighter when everyone else had there doubts.

To date she has had 17 different surgeries in her 7 short years. Two separate sutures in her skull to allow her brain growth, two to make her fingers as hers were completely fused together. Another to repair a hole in her heart.
And most recently a 10 hour surgery le fort 3 with red frame. This one has been the most  important but scariest operation to date for her hole family the risks that come with it.
It involved her midface been moved forward with this device to try help with her severe sleep apnea.
The recovery from this has not been easy, it's included 6 days intubated in temple streets ICU. She will wear this frame for 12 weeks in total 6 of those weeks her amazing parents will have to turn screws fixed to the device to move her bones apart. 
The impact of this operation has left a once happy, funny and sassy girl very down and withdrawn with anxiety.
We are hoping as a family that we could give Rebecca the most amazing gift in 11 weeks when this frame comes off for a "stay cation"for her self and amazing mam,dad and brothers,we want our beautiful girls smile and sparkle back and also to help with some medical costs along the way. 

You can follow Rebecca's journey on Facebook "Rebecca's story"

Thank you for reading her story.