Raymond is 5 years old! He was diagnosed October 4, 2018 with a rare live cancer hepatoblastoma. 1 in a million children will get this liver cancer. He has had multiple surgeries, immunotherapy, radiation, chemo therapies, natural medicine, and multiple obstacles! He hasn't got the real chance to be a kid. But that doesn't stop him from being so happy and having fun!
He was just recently deemed terminal( June, 2020). We were told since he has developed stage 3 kidney disease he wouldn't be able to have any other treatment. BUT we miraculously were able to get his kidneys to a function level to begin a clincal trial. He will be receiving car-t cell therapy.
He had radiation at the beginning of the year but it was non successful.
He has been on clinical trial drugs some have and are helping but its so unsure.
As of March 2021 Raymond was given a prognosis of a month ish. This isn't always promised but we still hold to a miracle. As of June 2021 he is still fighting and walking thus journey.
There will be updates along the way throughout the rest of his journey!
Thank you for your time!
Thank you for your prayers!
He was just recently deemed terminal( June, 2020). We were told since he has developed stage 3 kidney disease he wouldn't be able to have any other treatment. BUT we miraculously were able to get his kidneys to a function level to begin a clincal trial. He will be receiving car-t cell therapy.
He had radiation at the beginning of the year but it was non successful.
He has been on clinical trial drugs some have and are helping but its so unsure.
As of March 2021 Raymond was given a prognosis of a month ish. This isn't always promised but we still hold to a miracle. As of June 2021 he is still fighting and walking thus journey.
There will be updates along the way throughout the rest of his journey!
As of 10/28/2021 at 7:50pm Raymond went to be with the Lord
Thank you for your time!
Thank you for your prayers!
#RayofLight #awareness #miracle #morethan4 #findacure #terminal

