Help Support Raydon’s Fight Against Adrenoleukodystrophy

Raydon, who just turned 7, is full of energy, adventure, and a love for life. He’s all boy—he loves riding his bike, cruising in side-by-sides, and showing off every chance he gets. His smile and fearless spirit light up everyone around him.

Raydon, has been diagnosed with Childhood Cerebral Adrenoleukodystrophy or ALD. ALD is a rare genetic disorder that affects the brain and nervous system.

It damages the protective coating around nerves (called myelin), which is essential for movement, speech, and basic function. Without treatment, this condition can progress quickly and become life-threatening. Based on his most recent MRI it was decided that he was a candidate for a bone marrow transplant. After aggressive chemotherapy, the transplant can stop the ALD from causing more damage.

Fast diagnosis and treatment will give Raydon the best chance at stopping the ALD and give him a better quality of life. Raydon’s doctor is a world-renowned expert on ALD based at the Primary Children’s Hospital in Salt Lake City, UT.

The treatment takes about 4 months at which time Raydon and Mom or Dad will stay in Salt Lake for an undetermined time.

We are asking for your support—whether through a donation, sharing this page, or keeping Raydon in your thoughts and prayers. Every contribution will go toward his medical care, treatments, travel expenses, and helping ease the burden on his family so they can focus on what matters most: being there for Raydon. Your gift will be used to support them in Salt Lake in the months to come and to help us ensure they have a life to come back to at home.

Thank you for standing with us during this difficult time. Your kindness, love, and support mean more than words can express.

With gratitude,

Ray’s family