Rare Dads Race for Epilepsy

Rare Dads Race for Epilepsy campaign photo, 1 of 3Rare Dads Race for Epilepsy campaign photo, 1 of 3

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81 donors
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$6,810 raised of $5K

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Rare Dads Race for Epilepsy

Rare Dads Race for Epilepsy

0% complete

$6,810 raised of $5K

81 donations
Donation protected
Hi, we are three awesome dads of daughters with a rare disease who love to race and do endurance sports. We are coming together to run a team half-iron man this summer on July 28th in Augusta, Maine. All three of our daughters have epilepsy, along with several other disabilities and medical issues. We are raising funds and awareness for epilepsy research.

  • Chris, dad to Margot, who is 3 and has SCN8A epilepsy. He will be doing the swimming leg.
  • Quentin, dad to Cami, who is 4, and has septa-optic dysplasia. He will be doing the cycling leg.
  • Dario, dad to Fiadh, who is 3, and has epilepsy of an unknown cause. He will be doing the running leg.

Thanks for you all your support!

Quentin, Dario and Chris
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Co-organizers3

Madeleine Oudin
Organizer
Belmont, MA
Chris Burge
Co-organizer
Dario Mazzola
Co-organizer
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