Hi, this year I’ll be running a 40mile trail run in a very special fancy dress for a very special boy. Rupert Mosey, aged 4 years old, was born with a devastating genetic condition called Spinal Muscular Atrophy (SMA) Type 1, the leading genetic cause of infant death. Rupert’s parents (George and Charlie) set up RALLY ROUND RUPERT, a UK registered charity in 2023, with the aim to raise awareness of SMA and funds in support of clinical research