Rally for Taylor and Her Family

THANK YOU in advance for taking the time to read this campaign story and support Taylor and her family!! Please help us rally for this beautiful young woman and her family. Taylor is 24 yrs old and has a very rare genetic disease called Muckle-Wells. It is an autoimmune inflammatory disease which when not treated timely, can lead to a more severe condition of excessive protein deposits in various tissues in the body which can then cause severe pain, organ failure and death. Muckle-Wells only affects 1 in a million people! Taylor became ill at the age of 13 yrs old and went misdiagnosed and in and out of hospitals for the next 3-4 years until she was finally properly diagnosed in 2009 at the age of 16 yrs old. Taylor has undergone numerous abdominal surgeries and has complete failure of her abdominal organs (GI). She often suffers from rash, mouth sores, fever and severe abdominal and joint pain. She is nourished by IV and continues to smile despite knowing she is terminal. (see Youtube post below). She currently suffers from excrutiating pain and inability to sleep.  Over the last several months she has become bedridden requiring 24/7 care from her family and health care staff. Despite all of this she is a fighter and is fearless of her journey! She and her family have a very strong Christian Faith and know there is a purpose in this journey God has put before them.

With the years of being unknowingly misdiagnosed, in-and-out of hospitals and of needing to be medically flown to different states before her final diagnosis was made, their medical bills have become astronomical. In addition, Taylor has had numerous surgeries, home health care, feeding tubes, IVs, many medications (one costing as much as $18,000.00 every 3 days!).  In addition, Taylor is one of 4 children which include a youger sister and twin 15-year-old brothers. One brother has been treated for yet a different genetic inflammatory disease, called Familial Mediterranean Fever since the age of 9 yrs old, and now her other brother is displaying signs of Muckle-Wells and the family needs to get the $7500.00 genetic testing done to ensure timely and proper treatment for him!  Had Taylor's diagnosis been made earlier in her illness, and therefore properly treated sooner, she would most likely not have become terminal.

WE NEED TO HELP IN ANY WAY! Please rally, every amount helps!  If you  are unable to make a financial contribution to help the Landreth's with thier mounting medical debt, please know that prayers are always appreciated tooAll contributions are made thru a secure site and only the family can make withdrawals. This campaign is important to us because it touched our hearts deeply when we learned of Taylor and her incredible medical struggles, the endless financial tolls the family faces and the strength and faith both she and her family have. Please help them! All donations will go to Taylor’s parents, the beneficiaries, Mike and Mari Landreth. 

If you have any questions, please ask and I will do my best to answer them. Please see the CaringBridges link below to see more photos and posts over the past several years from Taylor, her family and friends. Also, the Youtube video below was done 6/2016 and shows her incredible strength and inner beauty as she entered this phase of her journey, which has since progressed.

Thank you again for your time in reading Taylor's Story!

(e.g. Caring Bridges Link)




Donations

  • Kelly Tyler 
    • $100 
    • 32 mos
  • David Cade 
    • $20 
    • 32 mos
  • Anonymous 
    • $500 
    • 32 mos
  • Anonymous 
    • $150 
    • 33 mos
  • Anonymous 
    • $160 
    • 33 mos
See all

Organizer and beneficiary

Martha Ellis 
Organizer
Peoria, AZ
Michael Landreth 
Beneficiary
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