Rally for Raelynn: Critical Care Needed

Raelynn is a 12 year old girl with a complex medical history. She has a gene mutation called MYLK that has caused her to have 7 strokes in her short years. Right now she is fighting hard! She has multiple organs that have deficits. The CT scan shows multiple cysts on her lungs, she has a severe GI issue that hasn't been fully diagnosed, but they are telling us it's most likely Chrones disease. She hasn't been able to drink anything for 2 weeks. She is on fluids and has lost 10 lbs in a short period. We also found out that her right kidney is not working properly. It's the size of a 1 year old. We need to get her back to her main hospital, where she has her whole medical team that has followed her for the last 10 years. We made the move out to Nevada after being in a bad situation. However, the doctors don't know what to do with her and they lack the specialists needed. The medical bills are going to be tremendous as we are looking for out of network care and getting life flighted to another state in the next day. Anything towards our travel expenses and our family going back and forth would be helpful. If she doesn't get the treatment she needs soon, it could be detrimental to her quality of life. Thank you everyone for your help.

-Raelynn's mom