First of all I would like to say thank you for taking the time to view our page.
My 9 year old daughter Teigan was only 8 years old when we woke up on Easter morning and our lives changed forever when she was tragically diagnosed with every mother’s worst nightmare, a rare brain tumour know as ‘Diffuse Pontine Glioma’ ( DIPG ) the worse aggressive and deadly of all childhood cancers. It is described as ‘terminal on diagnosis’ which means there is no cure, no effective treatment and 0% Survival rate. Considering all diagnoses, the 2 year serval rate is typically 10% and the 5 year survival rate is around only 2%.
Our family has been understandably turned upside down. At the time of diagnosis I was 36 weeks pregnant with Teigans little brother, aswell as being in lockdown with Teigan and her little sister Arianna. It felt like we had the weight of the world on our shoulders. I honestly didn’t know how we would make it through the day. To know we have made it this far, gives me the hope that is very much needed.
Anyone that knows Teigan, will know that even this will not stop her, she’s strong, brave and determined to beat this. After 1 round of radiotherapy, the doctors were amazed by how much the tumour had shrunk. This has kick started us into exploring every possible option we have. We have opened this page to raise money for a clinical drug trial we have decided to try in Switzerland. Teigan has to be within 12 weeks post radiotherapy, she is now currently on week 6.
After discussing the trials with Teigans consultant, we began to explore the many of trials outside the country, some even as far as the USA. These trials start from 100,000 - 400,000 or even more depending on treatment. So we opened this page to try and make the impossible, possible. We want to give our little girl the chance at life she deserves.
Any donation, no matter how big or small, will go towards providing Teigan with the best effective treatment out there. We will keep this page updated as we progress.
Thank you so much for your help
- Jade Williams
- Ken Mac
- David Hollingsworth