Raising funds to help Flynn’s Family

As we're all aware Flynnys little daughter Orla was born with a rare genetic condition called Autosomal Recessive Polycystic Kidney Disease (ARPKD).

When Orla was first born the prognosis was pretty bleak, but she defied the odds and fought against what was first predicted.

The plan for Orla was to help her to grow to get the right weight for her body to accept a kidney transplant.

This was met with many complications. Due to this Orla has spent the majority of her life hospitalized.

Since January this year, Orlas health has declined and required a transplant sooner than the consultants anticipated.

She never met the weight required but her body made the decision that it couldn't wait.

Orla required a live donor and luckily Flynny came back as a match.

Testing for the donor takes 4-12 months. The transplant now became classed as an emergency. They had to rush the testing through.

Flynny works on the railway and usually works away from home.

As the testing was being pushed through this meant he had to be available for last minute cancellations. Also due to how poorly she had become, being away from her just wasn't an option.

Transplant took place july 17th with both dad & daughter recovering well.

Orla does have further surgeries planned.

Due to spending so much of her young life in hospital and suffering such poor health, she's very behind development wise.

Hoping tho once home, with a lot of input from various therapies physio, speech & language, OT etc. She will now begin to have a normal childhood and thrive.

Flynny has not been able to work since May and being self employed he's not entitled to any financial assistance.

Recovery for the donor takes approx 3 month.

Unfortunately the bills keep rolling in, n we're just trying to take away some of the financial burden the family are under.

Times are hard financially for everyone at the moment but if anyone is able to contribute it would be greatly appreciated we all know Flynny would be allover something like this if it was one of us.