
Raise money for Siennas watch
Donation protected
For those of you that don’t know my story, I thought I would give you some in sight to the face behind the cakes!
I am a mum of two beautiful girls, Saphy (19) and Sienna (18), Sienna was born with a gene malfunction, causing her to have un-controllable epilepsy and has left her severely disabled, she is un-able to walk or talk, she has severe global development delay, partial sighted, scoliosis and a rod in her back, Autism, VNS fitted and needs my support 24/7 for all the tasks in her life, including feeding bathing, getting dressed etc. and is in a wheelchair for a lot of her life. She is mentally a baby, and so will always be my forever babe! Saphy, her sister, is a incredible lady, who is a high skilled TA in a special needs school (the same one her sister goes to) and is my right arm when it comes to caring for Sienna.
Making cakes was an option for me to be able to work from home, and work around Sienna, only booking cakes when I have time, and still being able to be Siennas full time carer, plus, I love doing it! Especially carved cakes!
With Siennas epilepsy, she is at high risk of a awful thing called SUDEP (Sudden un-expected death in Epilepsy) and every seizure she has, is so scary for us all, due to the way her seizures are, a regular seizure mattress won’t pick up on her seizures at night, and, as you can imagine, she needs her mum there when she has one, I have tried countless products to tell me if she is having a seizure, but none quite work. However, I have found out the a apple 10 watch has a fancy clever function, that will alert me if her heart rate goes over a certain level, this will help me indicate that a seizure could be on it's way, it also can take a ECG and measure her respiratory rates and again, alert me if they get too low, unfortunately, the emergency medication that she has to take, means that I have to watch her breathing carefully after as too much of it can cause her to just stop breathing.
Having this watch, will take a huge amount of panic away from me and reassurance that I can keep a close eye on her all the times, day and night.
So I am asking for any help you can offer in helping me get this watch for Sienna, thank you xx
Organizer
Becky Hollick
Organizer
England