Love for Layla

Layla Jean Alexander was born with a rare genetic syndrome known as Barakat Syndrome. Traits being kidney issues, thyroid and hearing loss. Although some  have additional issues, Layla has just those three.She was born 7 weeks early and was in the NICU for over a month while we learned to care for our tiny infant. Layla with an extra hurdle to jump was born with one nostril completely closed and findings of a  Thyroglossal Cyst.At 10 months old she had her first surgery to correct her nostril also known as Coanal Atresia to help her breath and not struggle daily.  Aware that it could close up and it might need a second or third surgery before she will be able to breath to her full potential. Unfortunately  due to unforeseen circumstances we lost Layla healthcare and her vital team of doctors needed to finish her surgeries. Layla ended up in the hospital recently with an abscess in her throat due to a cyst that has been there since birth. She will need surgery To remove the cyst to make sure the abscess doesn’t return, at the same time she will be getting her second nose surgery. Lastly our daughter is profoundly deaf. fortunately   She is the perfect candidate for cochlear implants which will give her the best chance to develop speech and hear all her love ones. Though we have been learning sign language the implants will give her opportunity for a brighter future.Our daughter is one tough cookie has had a rough start. Despite the cards she was delt, she is our warm , loving , smiley little miracle who brighten our lives everyday.  Thankyou from the bottom of our hearts and listening to her story. Our Family appreciates all the support we receive. 

The Alexanders