Raise Money for James with Battens Diease

My name is Ria Haney I am a close family friend of James and his mum Kate, we recently got told they're bungalow is being adapted to James needs,

James was sadly diagnosed with Battens diease (CLN2) which is a neurodegenitive brain condition in children, there is no cure and sadly life expectancy is between 7 and 12.

Children with CLN2 have been receiving treatment to delay the Condition and its been a success. This is still not a cure and sadly even though James has just celebrated his 12th birthday he has unfortunately lost some abilities, one being his eyesight

This is now why I am asking for help and support for much needed Medical equipment at home that will make Kates and James life easier and for them to make the happiest of memories

Any amount is appreciated for this strong and special little boy