Raise funds towards Gene Therapy for Eden Who has LGMD

Raise funds towards Gene Therapy for Eden Who has LGMD campaign photo, 1 of 2Raise funds towards Gene Therapy for Eden Who has LGMD campaign photo, 1 of 2

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94 donors
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€2,447 raised of 

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Raise funds towards Gene Therapy for Eden Who has LGMD

Raise funds towards Gene Therapy for Eden Who has LGMD

0% complete

€2,447 raised of 

94 donations
220KM FOR EDEN ☕️

On Friday, 5th June, I’ll be taking on a 220km run from Croke Park in Dublin to Salthill in Galway.

I’m doing this for a little boy named Eden, who is fighting LGMD (Limb-Girdle Muscular Dystrophy).

Eden has the opportunity to receive gene therapy treatment, but the cost is extremely high. Every euro raised will go towards helping him access this potentially life-changing treatment.

We had previously raised €2,000, but unfortunately the previous GoFundMe had to be refunded, meaning we’re now trying to rebuild that support and get the money back into the pot — and hopefully go even further.


I’ll begin at Croke Park and finish at Salthill, Galway, and I’d love for people to get behind this journey — whether that’s by donating, sharing this post, supporting along the route, or simply spreading awareness.

Every donation, no matter how small, brings Eden one step closer to receiving the gene therapy he needs !

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Organizer and beneficiary

Profile photo of David Fagan
David Fagan
Organizer
David Whelan
Beneficiary
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