Raise awareness of craniosynostosis

Hello, my name is Cymone, mum to this absolutely warrior Lawrence. Im here to help raise money for this amazing charity, headlines, so they can continue their work in raising awareness and helping other parents like us? Why? Because we had a battle to get a diagnosis.

When Lawrence was just two weeks old, our health care visitor referred us to the gp as Lawrence’s head had grew unusually quickly, from there we were referred to a paediatrician, someone who we should have been able to rely on, but unfortunately, we were told that nothing was wrong with Lawrence and sent on our way and told he just has a big head and that someone must have measured it wrong initially. In December, Lawrence was admitted into hospital with bronchiolitis where a dr finally picked up that something wasn’t right. Had we not have gone into hospital that day, we may have been none the wiser, and had we not have had treatment, Lawrence could have really have suffered.

It shouldn’t have to be a luck draw on what Dr you see, this condition needs to be more recognised and drs need to receive more education, because I know we aren’t the first family that have gone through this journey.

Headlines is working hard to raise awareness through the medical industry, but they also support families that do have concerns (I wish we knew about them at the time).

Thank you in advance for your contribution to this cause that means so much to me.

More information about Headlines Craniofacial Support: Supporting people with craniosynostosis and rare craniofacial conditions.