Raegan has spent well over 175 days over 19 stays in the hospital - much of that in isolation- since spring of 2017.
Raegans care plan is mostly private pay and costs in the thousands per month. As a two-income household down to one- we ask for your help in continuing to support Raegan in every way possible on her journey to well.
Every child is unique- here is her story.
Raegan is a lovable, smart 5-year old who lives in San Diego. Right now, we as a family are struggling to provide the level of care she needs to get her and keep her well. And Raegan has been acutely sick for months- gravely so at times. In July she was intubated and suffered from a rare bacterial infection that almost killed her. That was followed by a blood infection and the list goes on and on and on.
Our job as parents is to lift her up and help her continue to fight this rare combination of sickness and underlying chronic conditions that keeps us in a perpetual loop in and out of the hospital.
There is so much to say about Raegan. Like how she has a best friend Mr. Monkey who talks and is always by her hospital bedside. That she is atypical for her underlying genetic condition and has no interventions of any kind. That she is incredibly smart and uses modified sign language among other things to communicate just like any other child. That she is a true warrior princess- who has fought for every single basic function most of us take for granted- and then more acute battles which bring us to asking for your help.
This five-year old has seen and conquered so much, too much for any one person to go through in a lifetime. But she continues to get better and its a lot of work to get her there.
Humbly, we ask for your help in continuing to provide the best level of care and treatment for Raegan possible. We won't stop fighting for her as she she continues to fight. She stomps her feet to get up every day to keep on dancing -even when acute illness again and again knocks her down - she keeps getting back up. And so are we. Any and all donations will go strictly to Raegan's care plan designed to keep her well and support her when she starts to get sick. Most of what we do is not covered under her primary or secondary insurance. The following are some examples:
1) metabolic and diet program designed to optimize her ability to fight infection and stay healthy
2) alternative medicine and treatments that effectively treat her underlying chronic conditions and support building her immune system
3) extra private care support
4) travel and expenses for clinical trials and research and discovery treatments available.
****your thoughts and prayers are more than enough during this time if a financial contribution is not deemed warranted or possible****
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