Donation protected
My daughter has a terminal Lung Disease called
Cystic Fibrosis that she has battled her entire life.
Once an Active young adult and a college cheerleader.
Her lungs have diminished to below 20% lung function.
Hospital Stays only helped minimal. She has always fought with an incredible positive infectious attitude.
She is currently recovering from a Double Lung Transplant Surgery in the Denver Area and an additional two procedures as a result of complications.
It all happened quicker than anticipated so we were not able to complete any other type of fundraising. Rachel's Mom my wife passed away unexpectedly in early spring then her two parents Rachel's Grandparents passed with in the following 4 months. My wife had been out of work over a year with no 401k or life Insurance policy struggling with severe Neuropathy. The evaluation was a lengthy process to become active on the Transplant list. You get the call that you have waited 24 years to hear; that your loved one has a shot of a quality of life she has never seen or felt before!
You don't stop to think how in the world you are going to cover the Co-Pays, The in Hospital out of pocket expenses. They require you purchase a months worth of medications, supplements and supplies on discharge from the hospital which could be as soon as 10 to 14 days. The follow up is very regimented and extensive.
The follow-up in the first two weeks is two times weekly in clinic for 3 hours a visit with the costs of every test available to make sure no rejection, fungal or anti-microbial virus. The next two weeks is one day at 3 hours a visit same process. Then Every two weeks 1 visit. Then three weeks and then monthly which will include a Broncoscopy.
Rachel will not be able to drive for 6 months and not allowed to drive after Broncoscopy. I work on commissions only and this is quite a bit of time not making sales calls generating income. My son will be able to help some but he also has a full time job. We have Neighbors willing to pitch in once we know we are out of the woods which will provide some needed support.
We will need a home medical company administrating at home IV's and cleaning and maintenance of the pic line for the first month at home. They will remove after a month. Not sure the costs here so I may have under requested. I did the due diligence in securing the best insurance available.
In all transparences the loss of income the first month
may cause some financial hardships but over time hopefully can be made up. Any help, assistance, support would be greatly appreciated and needed during this time for our family.
I truly Thank you in advance for your Considerations!
Cystic Fibrosis that she has battled her entire life.
Once an Active young adult and a college cheerleader.
Her lungs have diminished to below 20% lung function.
Hospital Stays only helped minimal. She has always fought with an incredible positive infectious attitude.
She is currently recovering from a Double Lung Transplant Surgery in the Denver Area and an additional two procedures as a result of complications.
It all happened quicker than anticipated so we were not able to complete any other type of fundraising. Rachel's Mom my wife passed away unexpectedly in early spring then her two parents Rachel's Grandparents passed with in the following 4 months. My wife had been out of work over a year with no 401k or life Insurance policy struggling with severe Neuropathy. The evaluation was a lengthy process to become active on the Transplant list. You get the call that you have waited 24 years to hear; that your loved one has a shot of a quality of life she has never seen or felt before!
You don't stop to think how in the world you are going to cover the Co-Pays, The in Hospital out of pocket expenses. They require you purchase a months worth of medications, supplements and supplies on discharge from the hospital which could be as soon as 10 to 14 days. The follow up is very regimented and extensive.
The follow-up in the first two weeks is two times weekly in clinic for 3 hours a visit with the costs of every test available to make sure no rejection, fungal or anti-microbial virus. The next two weeks is one day at 3 hours a visit same process. Then Every two weeks 1 visit. Then three weeks and then monthly which will include a Broncoscopy.
Rachel will not be able to drive for 6 months and not allowed to drive after Broncoscopy. I work on commissions only and this is quite a bit of time not making sales calls generating income. My son will be able to help some but he also has a full time job. We have Neighbors willing to pitch in once we know we are out of the woods which will provide some needed support.
We will need a home medical company administrating at home IV's and cleaning and maintenance of the pic line for the first month at home. They will remove after a month. Not sure the costs here so I may have under requested. I did the due diligence in securing the best insurance available.
In all transparences the loss of income the first month
may cause some financial hardships but over time hopefully can be made up. Any help, assistance, support would be greatly appreciated and needed during this time for our family.
I truly Thank you in advance for your Considerations!
Organizer
Andy Nicolson
Organizer
Parker, CO