Let me tell you a little about my precious little boy. It all started when I was pregnant with him. I had lupus, Hashimotos , Graves disease, pulmonary hypertension, degenerative lung disease and chronic kidney disease . At 10 weeks I began to lose blood rapidly and was taken to the hospital. I lost over 1.5 liters total. They scheduled me for a D&C under the conclusion it simply was not possible for the baby to have survived that. Thankfully he did and the rest of the pregnancy was relatively uneventful .My C-section was scheduled at 39 1/2 weeks. My older kids stayed with a close friend so that my husband could be at the birth. Everything went according to plan. I got to meet my beautiful perfect little man on September 17, 2014 . He weighed in at 8lbs 3oz and was 21 1/2 inches!

       Since I my other two sons are special needs and I have no family close my husband went to care for them which meant I was by myself in the hospital for 3 days. On the second day he had the accident most newborn little boys do and I could not reach the things i needed to clean him up so buzzed the nurse and waited, she never came. I got up leaning on the rail. The rail gave way and I went down. I screamed and cried but no one came. I gathered myself and went on with what had to be done. After he was safe in his bassinet I saw the blood. The nurse eventually came yet refused to call a doctor.

      We soon left the hospital and things seemed ok for a few days, then I found myself in the ER. I was rushed to a wound care facility and endured what I can only describe as torture. This was every other day for the next four months. The aftermath I will deal with for the rest of my life. The repair will require at least 3 more surgeries to attempt to fix. While all of this is going on I noticed that my perfect little baby refused to eat. It took rather drastic measures to get nourishment into him. He always had his head to one side which I thought nothing of at the time. He had a head very full of beautiful black hair, which made it hard to see the small flat spot on his head.

      I took him to the Doctor who diagnosed him with "Torticollis". Torticollis also called wryneck; it is tightness in the neck muscle (sternocleidomastoid muscle). This neck muscle connects the collarbone (sternum) to the temporal bone of the skull (mastoid). This caused his head to be flat. What he needed was to begin physical therapy as soon as possible. They thought that in 3 months he would be surely cured. That didn't happen. We went back to the pediatrician, only to find he now had a severely flat head and asymmetry in his face all of which had caused a developmental delay. I left with an Rx for a plagiocephaly helmet.      

    I located an orthotics lab and set our appt. They gave me a bunch of codes and numbers to call my insurance company with. When did as I was told I was informed that they consider this strictly cosmetic and would not cover the cost of this very expensive durable medical helmet. I was crushed. Defeated and lost. Surely they HAD to help my little boy. Someone had to help him. I begged and cried to them. I have no idea how I will pay for my son to get the help he needs. 

      We have since taken him back to find out that it has gotten worse and they are going to need to shave little Mathyas head. This is where I need your help. I am a mother of 3 boys that all special needs. I myself am gravely ill and we pay all the money we can into insurance. Now we need this Helmet for our son. Will you please make this happen for him?