Brain Surgery Recovery

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26 donors
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$2,260 raised of $6K

Brain Surgery Recovery

Hi, my name is Ivelisse and I am fundraising for a better quality of life brain surgery. I have been battling with different diagnosis since 2019 and 2 brain surgeries for Intracranial Hypertension which caused Pulsatile Tinnitus along with severe stenosis of my sigmoid sinus veins and a venous aneurysm I was placed 2 stents and 11 coils on the right side of my brain. In July 2021 I had the same symptoms again and had a second surgery on the left side in which my surgeon placed 2 stents. I woke up with severe pain in my teeth and jaw area. These symptoms slowly increased and I am now having full blown attacks which bring me to my knees burning facial and gum pain, ice pick stabbing deep in my ear and eye pain, temple, headaches, swelling of my face and twitching along with the pulsatile tinnitus . These attacks are triggered by movement, chewing, talking and weather changes. I cannot lay on the left side of my face ..this has changed my life. The pain is constant. I've had many test and scans. I have seen countless doctors here in NY State and no answers. I am taking many medications which give me more side effects. Today April 21 st 2022 I had a Zoom consultation with a neurosurgeon from Stanford University and after reviewing my images he diagnosed me with Geniculate Neuralgia / Intermedius Nerve it is a very rare and hard diagnosis, along with Trigeminal Neuralgia known as the suicide disease,  he will perform an MVD Microvascular Decompression Surgery to either cut the nerve, separate the blood vessels that are compressed. I am overwhelmed with a definite diagnosis and the possibility of living a pain free and normal life. This surgery will take place in California on May 24th I have to be there by May 19th,  this is where my warrior people come into play.. I need help to be able to travel to California and pay for my medical expenses while I am there such as airfare, meals, hotel stay, transportation and any other care that I will require. Any help you can give is appreciated, even with just sharing my story. Thank you Update: my surgery was on 5/24/22 I had some blood vessels that were causing compression on  trigeminal nerve separated I also had my intermedius Nerve cut ...I am now experiencing lost of vertigo using a walker and some numbness on the left side of my face and head ...I need to learn to take things slow as I know this will be a long recovery road. I normally work 2 jobs and have been out of work for a while since I had another health issue ...I am behind on my mortgage and bills, my follow up is not until 7/21/22 and I have no idea when I will be returning to work ...this has not been easy, the recovery is really hard. Please share and if you can help anything would be appreciated. Thank you.

Organizer

Ivelisse Torres
Organizer
Syracuse, NY
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