Doctors recently found my cousin's, Matt Sooter and his wife Chandra, sweet little girl Addy has a lesion on her brainstem. Everyone is praying it is not DIPG.
As most of you that know Matt and Chandra, you know they are the most selfless people. They spend their lives serving others and the Lord.
They will clearly have many hospital bills along with hotel stays, eating out, and other expenses.
I'm doing this because I know that they would never do it for themselves.... so, along with prayers for them and the doctors, I'm creating a way to give to them in their time of need as they do for everyone on a daily basis.
Family and friends we are sorry to let you know like this, but we need your prayers and this was the fastest way we could think of to get the word out. At her well child appointment Friday Addy's doctor was concerned when he saw her because of her recent unsteadiness. He immediately started making phone calls and got us into Arkansas children's in LR Friday night. She had an MRI Saturday morning and the neurologist has come to see us a few times now. There's no way to say this or to lessen the impact so I'll just get it out. There is a mass near her brain stem. We don't know if it's actually in the stem or not, but there aren't any more masses in the spine which is good. The neurology team here will be meeting tomorrow to make a game plan for getting a biopsy. Once we get the biopsy (possibly on Tuesday) we will hopefully be able to make a plan for treatment. Please keep us all in your prayers, but especially Addy. We will keep you updated as best we can here on Facebook from here on out. We do ask that you not call or text us unless we call or text you first. For now we could use prayers that there is a wall/separation between the mass and her brain stem. Thank you! Please feel free to share this as we need all the prayers we can get. Pray for miracles. Pray for strength for Addy. Our hearts are broken for our little girl, but we are doing our best to trust in God and his healing power. We love you all and we thank you for your prayers and support of our little girl during this time.