My name is Tanya and on the 26th of September 2012, James my son was born 8 weeks premature weighing in at just 2.4oz.
We live in a remote mining community in southern WA called Kalgoorlie and Ben, my beautiful husband, worked in the mines and because our son was born prem, he had to have a dTap vaccination and that’s just what you do. So just to be safe, as our entire family was protected and as good parents we believed we were, we always did the right thing.
James ended up and is doing fine but Ben, a healthy 34-year-old loving father and beautiful husband, sadly and totally unknowingly suffered the worst fate possible.
Both reported and recorded by the CDC (Centre for Disease Control) on their website, Ben had developed post vaccination ADEM (Acute Disseminated Encephalomyelitis) – our lives were shattered!
By October the 11th, 2012, Ben was classified a quadriplegic and since then, his health mentally, emotionally and physically has deteriorated so bad, that our lives will never be the same again.
Our vows in sickness and in health, no longer see any of the later and I’m now a full-time carer for Ben, no different than he would have done for me because our love for each other was so strong, but this curveball of life has put us to the test.
We’ve lost so much and are on the brink of extinction. We’re in surmounting debt, unable to work because we have 5 children and can’t afford childcare to work and bring home anything because the growing costs to care for Ben are not met with any government support.
There’s nothing worse than experiencing this other than having to beg for help like this but we are essentially destitute.
Ben was taught how to walk again once he was able to but since 2014, his mental state has become worse and is wobbly on his feet. Due to the lack of proper mobility, his hands and feet have developed tendon deformity and just compounds on his emotional state.
This event is irreversible and our life sees no joy in sight.
Am I asking for help? Very much so!
I’m embarrassed to ask but humbled to receive it because we literally and sincerely have no choice.
We, or I rather will never be able to repay it back, but know that you’re keeping a family alive that will spend the rest of their lives like this and any help you can offer will go towards every day living cost, medical supplies, catheters, gloves etc, I literally need to do everything for him because of the physical limitations of the ADEM.
We are good people and it could have happened to anyone, but it happened to us.
If you can help, our entire family would be beyond words – please share our story in the hope that a dream might come true.
through our girls eyes xx